Developing and implementing innovative Patient-Centred Care Pathways for cancer patients
In the EU, 2.7M people were diagnosed with and 1.3M died of cancer in 2020. Over 12M people have survived cancer, thanks to advances in early detection and new therapies. With higher cure rates and more patients living longer with cancer, access to patient-centred care consisting of optimal supportive, palliative, survivorship and end-of-life care becomes increasingly important. However, cancer care still has silos, and to this day, there is no technical support available that is suitable for different cultures, settings and environments.
Several randomised controlled trials have provided evidence that the integration of patient-centred care in standard oncology care results in better patient and caregiver outcomes. As yet, these findings have not translated into clinical routine. This project will develop technology-enhanced and evidence-based patient-centred care pathways, called MyPath, to be merged with tumour-centred treatments across supportive, palliative, survivorship and end-of-life care. MyPath integrates patient-reported outcomes of the OUS Eir software, to be further advanced with contributions of renowned European oncologists, ethicists, psychologists and sociologists. It will be configurated on the eHealth platform of our SME partner Imatis. Its effectiveness and sustainability will be assessed in an implementation science study in 9 clinical centres across Europe.
The goals of the project are 1) significant improvement of the quality of and the access to the treatment and care, 2) reduction of variation in clinical practice, and 3) optimisation of resources in the family, community, and hospital care settings. Successfully achieving the milestones will reduce the physical, emotional, and ultimately economic burden linked to cancer.
This project contributes to the UN Sustainable Development Goals (SDGs) 3 and 9.
Oslo universitetssykehus, NO
Partners:
- Fondazione IRCCS Istituto Nazionale dei Tumori, IT
- Vrije Universiteit Brussel, BE
- INCLIVA – Instituto de Investigacion Sanitaria, ES
- Region Hovedstaden – Rigshospitalet, DK
- Fundatia Hospice Casa Sperantei, RO
- DNV Imatis AS, NO
- European Association for Palliative Care, BE
- European Cancer Patient Coalition, BE
- European Society for Medical Oncology, CH
- University of Edinburgh, UK
- University of Leeds, UK
- Leeds Teaching Hospitals National Health Service Trust, UK
- Universiteit Maastricht, NL
- accelopment Schweiz AG, CH
